Assessment of HL7 FHIR Interoperability Between EHR Systems and the Survivorship Passport v2.0 Platform to Generate Treatment Summaries for Childhood Cancer Survivors in Six Clinics: Preliminary Testing Results

Davide Saraceno; Catherine Chronaki; Giorgio Cangioli; Anna-Liesa Filbert; Monica Muraca; Alessandra Berti; Rita Rielli; Nikos Thomopulos; Lisa Knoerr; Diana Walz; Anke Neumann; Andrea Beccaria; Anna Aulicino; Brigitte Nicolas; Giacomo Cavalca; Anne Uyttebroeck; Maria van Helvoirt; Tom Brié; Erik Vanden Meersch; Ruth Ladenstein; Edit Bardi; Günter Schreier; Stefan Beyer; Markus Müllner-Rieder; María Teresa Tormo Alcañiz; Lucas Cervero Beltran; Jelena Rascon; Monika Kapitančukė; Justas Trinkūnas; Eglė Stukaitė-Ruibienė; Paulius Ragauskas; Audronė Ciesiūnienė; Riccardo Haupt; Desiree Grabow

doi:10.3233/SHTI240646

Assessment of HL7 FHIR Interoperability Between EHR Systems and the Survivorship Passport v2.0 Platform to Generate Treatment Summaries for Childhood Cancer Survivors in Six Clinics: Preliminary Testing Results

Davide Saraceno
, Catherine Chronaki
, Giorgio Cangioli
, Anna-Liesa Filbert
, Monica Muraca
, Alessandra Berti
, Rita Rielli
, Nikos Thomopulos
, Lisa Knoerr
, Diana Walz
, Anke Neumann
, Andrea Beccaria
, Anna Aulicino
, Brigitte Nicolas
, Giacomo Cavalca
, Anne Uyttebroeck
, Maria van Helvoirt
, Tom Brié
, Erik Vanden Meersch
, Ruth Ladenstein

Edit Bardi, Günter Schreier, Stefan Beyer, Markus Müllner-Rieder, María Teresa Tormo Alcañiz, Lucas Cervero Beltran, Jelena Rascon, Monika Kapitančukė, Justas Trinkūnas, Eglė Stukaitė-Ruibienė, Paulius Ragauskas, Audronė Ciesiūnienė, Riccardo Haupt, Desiree Grabow

Digital Health Information Systems

Cineca Consortium of Universities
HL7 Europe
University Medical Center Mainz
University of Lübeck
IRCCS Istituto Giannina Gaslini - Genova
University Hospitals Leuven, KU Leuven
St. Anna Children's Cancer Research Institute (CCRI)
Saint Anna Children’s Hospital
Kepler University Clinic, Linz
Instituto de Investigación Sanitaria La Fe de Valencia
Hospital Universitario La Fe
Vilnius University Hospital Santaros Klinikos

Publikation: Beitrag in Buch oder Tagungsband › Vortrag mit Beitrag in Tagungsband › Begutachtung

Abstract

The Survivorship Passport (SurPass) for childhood cancer survivors provides a personalized treatment summary together with a care plan for long-term screening of possible late effects. HL7 FHIR connectivity of Electronic Health Record (EHR) systems with the SurPass has been proposed to reduce the burden of collecting and organizing the relevant information. We present the results of testing and validation efforts conducted across six clinics in Austria, Belgium, Germany, Italy, Lithuania, and Spain. We also discuss ways in which this experience can be used to reduce efforts for the SurPass integration in other clinics across Europe.

Originalsprache	Englisch
Titel	Proceedings of Medical Informatics Europe 2024
Untertitel	Digital Health and Informatics Innovations for Sustainable Health Care Systems
Redakteure/-innen	John Mantas, Arie Hasman, George Demiris, Kaija Saranto, Michael Marschollek, Theodoros N. Arvanitis, Ivana Ognjanović, Arriel Benis, Parisis Gallos, Emmanouil Zoulias, Elisavet Andrikopoulou
Herausgeber (Verlag)	IOS Press BV
Seiten	1280-1284
Seitenumfang	5
Band	316
ISBN (elektronisch)	978-1-64368-533-5
DOIs	https://doi.org/10.3233/SHTI240646
Publikationsstatus	Veröffentlicht - 22 Aug. 2024
Veranstaltung	Medical Informatics Europe Conference (MIE 2024): Digital Health and Informatics Innovations for Sustainable Health Care Systems - Athens, Griechenland Dauer: 25 Aug. 2024 → 29 Aug. 2024 Konferenznummer: 34 https://mie2024.org/

Publikationsreihe

Name	Studies in Health Technology and Informatics
Herausgeber (Verlag)	IOS Press BV
ISSN (Print)	0926-9630

Konferenz

Konferenz	Medical Informatics Europe Conference (MIE 2024)
Kurztitel	MIE 2024
Land/Gebiet	Griechenland
Stadt	Athens
Zeitraum	25/08/24 → 29/08/24
Internetadresse	https://mie2024.org/

UN SDGs

Dieser Output leistet einen Beitrag zu folgendem(n) Ziel(en) für nachhaltige Entwicklung

SDG 3 – Gute Gesundheit und Wohlergehen

Research Field

Exploration of Digital Health

Zugriff auf Dokument

10.3233/SHTI240646Lizenz: CC BY-NC

Andere Dateien und Links

Proof of presentation in the conference programme

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Saraceno, D., Chronaki, C., Cangioli, G., Filbert, A.-L., Muraca, M., Berti, A., Rielli, R., Thomopulos, N., Knoerr, L., Walz, D., Neumann, A., Beccaria, A., Aulicino, A., Nicolas, B., Cavalca, G., Uyttebroeck, A., van Helvoirt, M., Brié, T., Vanden Meersch, E., ... Grabow, D. (2024). Assessment of HL7 FHIR Interoperability Between EHR Systems and the Survivorship Passport v2.0 Platform to Generate Treatment Summaries for Childhood Cancer Survivors in Six Clinics: Preliminary Testing Results. in J. Mantas, A. Hasman, G. Demiris, K. Saranto, M. Marschollek, T. N. Arvanitis, I. Ognjanović, A. Benis, P. Gallos, E. Zoulias, & E. Andrikopoulou (Hrsg.), Proceedings of Medical Informatics Europe 2024: Digital Health and Informatics Innovations for Sustainable Health Care Systems (Band 316, S. 1280-1284). (Studies in Health Technology and Informatics). IOS Press BV. https://doi.org/10.3233/SHTI240646

Saraceno, Davide ; Chronaki, Catherine ; Cangioli, Giorgio et al. / Assessment of HL7 FHIR Interoperability Between EHR Systems and the Survivorship Passport v2.0 Platform to Generate Treatment Summaries for Childhood Cancer Survivors in Six Clinics: Preliminary Testing Results. Proceedings of Medical Informatics Europe 2024: Digital Health and Informatics Innovations for Sustainable Health Care Systems. Hrsg. / John Mantas ; Arie Hasman ; George Demiris ; Kaija Saranto ; Michael Marschollek ; Theodoros N. Arvanitis ; Ivana Ognjanović ; Arriel Benis ; Parisis Gallos ; Emmanouil Zoulias ; Elisavet Andrikopoulou. Band 316 IOS Press BV, 2024. S. 1280-1284 (Studies in Health Technology and Informatics).

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abstract = "The Survivorship Passport (SurPass) for childhood cancer survivors provides a personalized treatment summary together with a care plan for long-term screening of possible late effects. HL7 FHIR connectivity of Electronic Health Record (EHR) systems with the SurPass has been proposed to reduce the burden of collecting and organizing the relevant information. We present the results of testing and validation efforts conducted across six clinics in Austria, Belgium, Germany, Italy, Lithuania, and Spain. We also discuss ways in which this experience can be used to reduce efforts for the SurPass integration in other clinics across Europe.",

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note = "This article is published online with Open Access by IOS Press and distributed under the terms of the Creative Commons Attribution Non-Commercial License 4.0 (CC BY-NC 4.0); Medical Informatics Europe Conference (MIE 2024) : Digital Health and Informatics Innovations for Sustainable Health Care Systems, MIE 2024 ; Conference date: 25-08-2024 Through 29-08-2024",

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editor = "John Mantas and Arie Hasman and George Demiris and Kaija Saranto and Michael Marschollek and Arvanitis, \{Theodoros N.\} and Ivana Ognjanovi{\'c} and Arriel Benis and Parisis Gallos and Emmanouil Zoulias and Elisavet Andrikopoulou",

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Saraceno, D, Chronaki, C, Cangioli, G, Filbert, A-L, Muraca, M, Berti, A, Rielli, R, Thomopulos, N, Knoerr, L, Walz, D, Neumann, A, Beccaria, A, Aulicino, A, Nicolas, B, Cavalca, G, Uyttebroeck, A, van Helvoirt, M, Brié, T, Vanden Meersch, E, Ladenstein, R, Bardi, E, Schreier, G , Beyer, S , Müllner-Rieder, M, Tormo Alcañiz, MT, Cervero Beltran, L, Rascon, J, Kapitančukė, M, Trinkūnas, J, Stukaitė-Ruibienė, E, Ragauskas, P, Ciesiūnienė, A, Haupt, R & Grabow, D 2024, Assessment of HL7 FHIR Interoperability Between EHR Systems and the Survivorship Passport v2.0 Platform to Generate Treatment Summaries for Childhood Cancer Survivors in Six Clinics: Preliminary Testing Results. in J Mantas, A Hasman, G Demiris, K Saranto, M Marschollek, TN Arvanitis, I Ognjanović, A Benis, P Gallos, E Zoulias & E Andrikopoulou (Hrsg.), Proceedings of Medical Informatics Europe 2024: Digital Health and Informatics Innovations for Sustainable Health Care Systems. Bd. 316, Studies in Health Technology and Informatics, IOS Press BV, S. 1280-1284, Medical Informatics Europe Conference (MIE 2024), Athens, Griechenland, 25/08/24. https://doi.org/10.3233/SHTI240646

Assessment of HL7 FHIR Interoperability Between EHR Systems and the Survivorship Passport v2.0 Platform to Generate Treatment Summaries for Childhood Cancer Survivors in Six Clinics: Preliminary Testing Results. / Saraceno, Davide; Chronaki, Catherine; Cangioli, Giorgio et al.
Proceedings of Medical Informatics Europe 2024: Digital Health and Informatics Innovations for Sustainable Health Care Systems. Hrsg. / John Mantas; Arie Hasman; George Demiris; Kaija Saranto; Michael Marschollek; Theodoros N. Arvanitis; Ivana Ognjanović; Arriel Benis; Parisis Gallos; Emmanouil Zoulias; Elisavet Andrikopoulou. Band 316 IOS Press BV, 2024. S. 1280-1284 (Studies in Health Technology and Informatics).

Publikation: Beitrag in Buch oder Tagungsband › Vortrag mit Beitrag in Tagungsband › Begutachtung

TY - GEN

T1 - Assessment of HL7 FHIR Interoperability Between EHR Systems and the Survivorship Passport v2.0 Platform to Generate Treatment Summaries for Childhood Cancer Survivors in Six Clinics: Preliminary Testing Results

AU - Saraceno, Davide

AU - Chronaki, Catherine

AU - Cangioli, Giorgio

AU - Filbert, Anna-Liesa

AU - Muraca, Monica

AU - Berti, Alessandra

AU - Rielli, Rita

AU - Thomopulos, Nikos

AU - Knoerr, Lisa

AU - Walz, Diana

AU - Neumann, Anke

AU - Beccaria, Andrea

AU - Aulicino, Anna

AU - Nicolas, Brigitte

AU - Cavalca, Giacomo

AU - Uyttebroeck, Anne

AU - van Helvoirt, Maria

AU - Brié, Tom

AU - Vanden Meersch, Erik

AU - Ladenstein, Ruth

AU - Bardi, Edit

AU - Schreier, Günter

AU - Beyer, Stefan

AU - Müllner-Rieder, Markus

AU - Tormo Alcañiz, María Teresa

AU - Cervero Beltran, Lucas

AU - Rascon, Jelena

AU - Kapitančukė, Monika

AU - Trinkūnas, Justas

AU - Stukaitė-Ruibienė, Eglė

AU - Ragauskas, Paulius

AU - Ciesiūnienė, Audronė

AU - Haupt, Riccardo

AU - Grabow, Desiree

N1 - Conference code: 34

PY - 2024/8/22

Y1 - 2024/8/22

N2 - The Survivorship Passport (SurPass) for childhood cancer survivors provides a personalized treatment summary together with a care plan for long-term screening of possible late effects. HL7 FHIR connectivity of Electronic Health Record (EHR) systems with the SurPass has been proposed to reduce the burden of collecting and organizing the relevant information. We present the results of testing and validation efforts conducted across six clinics in Austria, Belgium, Germany, Italy, Lithuania, and Spain. We also discuss ways in which this experience can be used to reduce efforts for the SurPass integration in other clinics across Europe.

AB - The Survivorship Passport (SurPass) for childhood cancer survivors provides a personalized treatment summary together with a care plan for long-term screening of possible late effects. HL7 FHIR connectivity of Electronic Health Record (EHR) systems with the SurPass has been proposed to reduce the burden of collecting and organizing the relevant information. We present the results of testing and validation efforts conducted across six clinics in Austria, Belgium, Germany, Italy, Lithuania, and Spain. We also discuss ways in which this experience can be used to reduce efforts for the SurPass integration in other clinics across Europe.

KW - Testing

KW - Validation

KW - HL7 FHIR IG

KW - EHR systems

KW - Cancer Survivorship

U2 - 10.3233/SHTI240646

DO - 10.3233/SHTI240646

M3 - Conference Proceedings with Oral Presentation

C2 - 39176615

VL - 316

T3 - Studies in Health Technology and Informatics

SP - 1280

EP - 1284

BT - Proceedings of Medical Informatics Europe 2024

A2 - Mantas, John

A2 - Hasman, Arie

A2 - Demiris, George

A2 - Saranto, Kaija

A2 - Marschollek, Michael

A2 - Arvanitis, Theodoros N.

A2 - Ognjanović, Ivana

A2 - Benis, Arriel

A2 - Gallos, Parisis

A2 - Zoulias, Emmanouil

A2 - Andrikopoulou, Elisavet

PB - IOS Press BV

T2 - Medical Informatics Europe Conference (MIE 2024)

Y2 - 25 August 2024 through 29 August 2024

ER -

Saraceno D, Chronaki C, Cangioli G, Filbert AL, Muraca M, Berti A et al. Assessment of HL7 FHIR Interoperability Between EHR Systems and the Survivorship Passport v2.0 Platform to Generate Treatment Summaries for Childhood Cancer Survivors in Six Clinics: Preliminary Testing Results. in Mantas J, Hasman A, Demiris G, Saranto K, Marschollek M, Arvanitis TN, Ognjanović I, Benis A, Gallos P, Zoulias E, Andrikopoulou E, Hrsg., Proceedings of Medical Informatics Europe 2024: Digital Health and Informatics Innovations for Sustainable Health Care Systems. Band 316. IOS Press BV. 2024. S. 1280-1284. (Studies in Health Technology and Informatics). doi: 10.3233/SHTI240646