Factors Influencing Implementation of the Survivorship Passport: The IT Perspective

Catherine Chronaki, Eliana Charalambous, Giorgio Cangioli (Vortragende:r), Günter Schreier, Selina van den Oever, Helena van der Pal, Leontien Kremer, Anne Uyttebroeck, Bart Van den Bosch, Justas Trinkunas, Jelena Rascon, Ruth Ladenstein, Vanessa Düster, Edit Bardi, Diana Walz, Anna-Liesa Filberd, Desiree Grabow, Thorsten Langer, Adela Cañete Nieto, Antonio J. Orduña GalánMarisa Correcher Palau, Giacomo Cavalca, Riccardo Haupt

Publikation: Beitrag in Buch oder TagungsbandVortrag mit Beitrag in TagungsbandBegutachtung


Compared to the general population, childhood cancer survivors represent a vulnerable population as they are at increased risk of developing health problems, known as late effects, resulting in excess morbidity and mortality. The Survivorship Passport aims to capture key health data about the survivors and their treatment, as well as personalized recommendations and a care plan with the aim to support long-term survivorship care. The PanCareSurPass (PCSP) project building on the experience gained in an earlier implementation in Giannina Gaslini Institute, Italy, will implement and rigorously assess an integrated, HL7 FHIR based, implementation of the Survivorship Passport. The six implementation countries, namely Austria, Belgium, Germany, Italy, Lithuania, and Spain, are supported by different national or regional digital health infrastructures and Electronic Medical Record (EMR) systems. Semi structured interviews were carried out to explore potential factors affecting implementation, identify use cases, and coded data that can be semi-automatically transferred from the EMR to SurPass. This paper reflects on findings of these interviews and confirms the need for a multidisciplinary and multi-professional approach towards a sustainable and integrated large-scale implementation of the Survivorship Passport across Europe.
TiteldHealth 2022 - Proceedings of the 16th Health Informatics Meets Digital Health Conference
Redakteure/-innenGünter Schreier, Bernhard Erich Pfeifer, Martin Baumgartner, Dieter Hayn
Herausgeber (Verlag)IOS Press
ISBN (Print)978-1-64368-282-2
PublikationsstatusVeröffentlicht - 2022
VeranstaltungdHealth 2022 - 16th Annual Conference on Health Informatics meets Digital Health -
Dauer: 24 Mai 202225 Mai 2022


KonferenzdHealth 2022 - 16th Annual Conference on Health Informatics meets Digital Health

Research Field

  • Exploration of Digital Health


  • International Patient Summary
  • Paediatric Oncology
  • Cancer Survivors
  • Survivorship Passport
  • Childhood Cancer
  • Electronic Medical Records
  • HL7 FHIR


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