IT-Related Barriers and Facilitators to the Implementation of a New European eHealth Solution, the Digital Survivorship Passport (SurPass Version 2.0): Semistructured Digital Survey

doi:10.2196/49910

IT-Related Barriers and Facilitators to the Implementation of a New European eHealth Solution, the Digital Survivorship Passport (SurPass Version 2.0): Semistructured Digital Survey

Digital Health Information Systems

Princess Máxima Center for Pediatric Oncology
Venizeleio General Hospital of Heraklion
HL7 Europe
Hospital Universitario y Politécnico de La Fe
St. Anna Children’s Hospital
Department of Paediatrics and Adolescent Medicine, Johannes Kepler University Linz
Childhood Cancer International (CCI) Europe
Instituto de Investigación Sanitaria La Fe de Valencia
Gesundheit Österreich GmbH (GÖG)
St. Anna Children’s Cancer Research Institute (CCRI)
Division of Childhood Cancer Epidemiology, German Childhood Cancer Registry, Institute of Medical Biostatistics, Epidemiology and Informatics (IMBEI), University Medical Center of the Johannes Gutenberg University Mainz
Istituto di Ricovero e Cura a Carattere Scientifico, Istituto Giannina Gaslini
University Hospitals Leuven
Medical University of Vienna
Universitätsklinikum Schleswig-Holstein
Vilnius University Hospital Santaros Klinikos
Clinics for Children’s Diseases, Institute of Clinical Medicine, Faculty of Medicine, Vilnius University
University Medical Center Utrecht
University of Amsterdam
HL7 Austria

Research output: Contribution to journal › Article › peer-review

Abstract

BACKGROUND: To overcome knowledge gaps and optimize long-term follow-up (LTFU) care for childhood cancer survivors, the concept of the Survivorship Passport (SurPass) has been invented. Within the European PanCareSurPass project, the semiautomated and interoperable SurPass (version 2.0) will be optimized, implemented, and evaluated at 6 LTFU care centers representing 6 European countries and 3 distinct health system scenarios: (1) national electronic health information systems (EHISs) in Austria and Lithuania, (2) regional or local EHISs in Italy and Spain, and (3) cancer registries or hospital-based EHISs in Belgium and Germany.

OBJECTIVE: We aimed to identify and describe barriers and facilitators for SurPass (version 2.0) implementation concerning semiautomation of data input, interoperability, data protection, privacy, and cybersecurity.

METHODS: IT specialists from the 6 LTFU care centers participated in a semistructured digital survey focusing on IT-related barriers and facilitators to SurPass (version 2.0) implementation. We used the fit-viability model to assess the compatibility and feasibility of integrating SurPass into existing EHISs.

RESULTS: In total, 13/20 (65%) invited IT specialists participated. The main barriers and facilitators in all 3 health system scenarios related to semiautomated data input and interoperability included unaligned EHIS infrastructure and the use of interoperability frameworks and international coding systems. The main barriers and facilitators related to data protection or privacy and cybersecurity included pseudonymization of personal health data and data retention. According to the fit-viability model, the first health system scenario provides the best fit for SurPass implementation, followed by the second and third scenarios.

CONCLUSIONS: This study provides essential insights into the information and IT-related influencing factors that need to be considered when implementing the SurPass (version 2.0) in clinical practice. We recommend the adoption of Health Level Seven Fast Healthcare Interoperability Resources and data security measures such as encryption, pseudonymization, and multifactor authentication to protect personal health data where applicable. In sum, this study offers practical insights into integrating digital health solutions into existing EHISs.

Original language	English
Article number	e49910
Pages (from-to)	e49910
Number of pages	18
Journal	Journal of Medical Internet Research
Volume	26
DOIs	https://doi.org/10.2196/49910
Publication status	Published - 2 May 2024

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being

Research Field

Exploration of Digital Health

Keywords

Humans
Telemedicine/methods
Europe
Surveys and Questionnaires
Electronic Health Records
Cancer Survivors
Computer Security
Survivorship

Access to Document

10.2196/49910

Cite this

@article{6701e1b614d04ba68ba9c3a7aaa902da,

title = "IT-Related Barriers and Facilitators to the Implementation of a New European eHealth Solution, the Digital Survivorship Passport (SurPass Version 2.0): Semistructured Digital Survey",

abstract = "BACKGROUND: To overcome knowledge gaps and optimize long-term follow-up (LTFU) care for childhood cancer survivors, the concept of the Survivorship Passport (SurPass) has been invented. Within the European PanCareSurPass project, the semiautomated and interoperable SurPass (version 2.0) will be optimized, implemented, and evaluated at 6 LTFU care centers representing 6 European countries and 3 distinct health system scenarios: (1) national electronic health information systems (EHISs) in Austria and Lithuania, (2) regional or local EHISs in Italy and Spain, and (3) cancer registries or hospital-based EHISs in Belgium and Germany.OBJECTIVE: We aimed to identify and describe barriers and facilitators for SurPass (version 2.0) implementation concerning semiautomation of data input, interoperability, data protection, privacy, and cybersecurity.METHODS: IT specialists from the 6 LTFU care centers participated in a semistructured digital survey focusing on IT-related barriers and facilitators to SurPass (version 2.0) implementation. We used the fit-viability model to assess the compatibility and feasibility of integrating SurPass into existing EHISs.RESULTS: In total, 13/20 (65\%) invited IT specialists participated. The main barriers and facilitators in all 3 health system scenarios related to semiautomated data input and interoperability included unaligned EHIS infrastructure and the use of interoperability frameworks and international coding systems. The main barriers and facilitators related to data protection or privacy and cybersecurity included pseudonymization of personal health data and data retention. According to the fit-viability model, the first health system scenario provides the best fit for SurPass implementation, followed by the second and third scenarios.CONCLUSIONS: This study provides essential insights into the information and IT-related influencing factors that need to be considered when implementing the SurPass (version 2.0) in clinical practice. We recommend the adoption of Health Level Seven Fast Healthcare Interoperability Resources and data security measures such as encryption, pseudonymization, and multifactor authentication to protect personal health data where applicable. In sum, this study offers practical insights into integrating digital health solutions into existing EHISs.",

keywords = "Humans, Telemedicine/methods, Europe, Surveys and Questionnaires, Electronic Health Records, Cancer Survivors, Computer Security, Survivorship",

author = "\{de Beijer\}, \{Ismay A E\} and \{van den Oever\}, \{Selina R\} and Eliana Charalambous and Giorgio Cangioli and Julia Balaguer and Edit Bardi and Marie Alfes and \{Ca{\~n}ete Nieto\}, Adela and Marisa Correcher and \{Pinto da Costa\}, Tiago and Alexander Degelsegger-M{\'a}rquez and Vanessa D{\"u}ster and Anna-Liesa Filbert and Desiree Grabow and Gerald Gredinger and Hannah Gsell and Riccardo Haupt and \{van Helvoirt\}, Maria and Ruth Ladenstein and Thorsten Langer and Anja Laschkolnig and Monica Muraca and Pluijm, \{Saskia M F\} and Jelena Rascon and G{\"u}nter Schreier and Zuzana Tom{\'a}{\v s}ikova and Florian Trauner and Justas Trinkūnas and Kathrin Trunner and Anne Uyttebroeck and Kremer, \{Leontien C M\} and \{van der Pal\}, \{Helena J H\} and Catherine Chronaki",

note = "{\textcopyright}Ismay A E de Beijer, Selina R van den Oever, Eliana Charalambous, Giorgio Cangioli, Julia Balaguer, Edit Bardi, Marie Alfes, Adela Ca{\~n}ete Nieto, Marisa Correcher, Tiago Pinto da Costa, Alexander Degelsegger-M{\'a}rquez, Vanessa D{\"u}ster, Anna-Liesa Filbert, Desiree Grabow, Gerald Gredinger, Hannah Gsell, Riccardo Haupt, Maria van Helvoirt, Ruth Ladenstein, Thorsten Langer, Anja Laschkolnig, Monica Muraca, Saskia M F Pluijm, Jelena Rascon, G{\"u}nter Schreier, Zuzana Tom{\'a}{\v s}ikova, Florian Trauner, Justas Trinkūnas, Kathrin Trunner, Anne Uyttebroeck, Leontien C M Kremer, Helena J H van der Pal, Catherine Chronaki, PanCareSurPass Consortium. Originally published in the Journal of Medical Internet Research (https://www.jmir.org), 02.05.2024.",

year = "2024",

month = may,

day = "2",

doi = "10.2196/49910",

language = "English",

volume = "26",

pages = "e49910",

journal = "Journal of Medical Internet Research",

issn = "1439-4456",

publisher = "JMIR Publications Inc.",

}

TY - JOUR

T1 - IT-Related Barriers and Facilitators to the Implementation of a New European eHealth Solution, the Digital Survivorship Passport (SurPass Version 2.0)

T2 - Semistructured Digital Survey

AU - de Beijer, Ismay A E

AU - van den Oever, Selina R

AU - Charalambous, Eliana

AU - Cangioli, Giorgio

AU - Balaguer, Julia

AU - Bardi, Edit

AU - Alfes, Marie

AU - Cañete Nieto, Adela

AU - Correcher, Marisa

AU - Pinto da Costa, Tiago

AU - Degelsegger-Márquez, Alexander

AU - Düster, Vanessa

AU - Filbert, Anna-Liesa

AU - Grabow, Desiree

AU - Gredinger, Gerald

AU - Gsell, Hannah

AU - Haupt, Riccardo

AU - van Helvoirt, Maria

AU - Ladenstein, Ruth

AU - Langer, Thorsten

AU - Laschkolnig, Anja

AU - Muraca, Monica

AU - Pluijm, Saskia M F

AU - Rascon, Jelena

AU - Schreier, Günter

AU - Tomášikova, Zuzana

AU - Trauner, Florian

AU - Trinkūnas, Justas

AU - Trunner, Kathrin

AU - Uyttebroeck, Anne

AU - Kremer, Leontien C M

AU - van der Pal, Helena J H

AU - Chronaki, Catherine

N1 - ©Ismay A E de Beijer, Selina R van den Oever, Eliana Charalambous, Giorgio Cangioli, Julia Balaguer, Edit Bardi, Marie Alfes, Adela Cañete Nieto, Marisa Correcher, Tiago Pinto da Costa, Alexander Degelsegger-Márquez, Vanessa Düster, Anna-Liesa Filbert, Desiree Grabow, Gerald Gredinger, Hannah Gsell, Riccardo Haupt, Maria van Helvoirt, Ruth Ladenstein, Thorsten Langer, Anja Laschkolnig, Monica Muraca, Saskia M F Pluijm, Jelena Rascon, Günter Schreier, Zuzana Tomášikova, Florian Trauner, Justas Trinkūnas, Kathrin Trunner, Anne Uyttebroeck, Leontien C M Kremer, Helena J H van der Pal, Catherine Chronaki, PanCareSurPass Consortium. Originally published in the Journal of Medical Internet Research (https://www.jmir.org), 02.05.2024.

PY - 2024/5/2

Y1 - 2024/5/2

N2 - BACKGROUND: To overcome knowledge gaps and optimize long-term follow-up (LTFU) care for childhood cancer survivors, the concept of the Survivorship Passport (SurPass) has been invented. Within the European PanCareSurPass project, the semiautomated and interoperable SurPass (version 2.0) will be optimized, implemented, and evaluated at 6 LTFU care centers representing 6 European countries and 3 distinct health system scenarios: (1) national electronic health information systems (EHISs) in Austria and Lithuania, (2) regional or local EHISs in Italy and Spain, and (3) cancer registries or hospital-based EHISs in Belgium and Germany.OBJECTIVE: We aimed to identify and describe barriers and facilitators for SurPass (version 2.0) implementation concerning semiautomation of data input, interoperability, data protection, privacy, and cybersecurity.METHODS: IT specialists from the 6 LTFU care centers participated in a semistructured digital survey focusing on IT-related barriers and facilitators to SurPass (version 2.0) implementation. We used the fit-viability model to assess the compatibility and feasibility of integrating SurPass into existing EHISs.RESULTS: In total, 13/20 (65%) invited IT specialists participated. The main barriers and facilitators in all 3 health system scenarios related to semiautomated data input and interoperability included unaligned EHIS infrastructure and the use of interoperability frameworks and international coding systems. The main barriers and facilitators related to data protection or privacy and cybersecurity included pseudonymization of personal health data and data retention. According to the fit-viability model, the first health system scenario provides the best fit for SurPass implementation, followed by the second and third scenarios.CONCLUSIONS: This study provides essential insights into the information and IT-related influencing factors that need to be considered when implementing the SurPass (version 2.0) in clinical practice. We recommend the adoption of Health Level Seven Fast Healthcare Interoperability Resources and data security measures such as encryption, pseudonymization, and multifactor authentication to protect personal health data where applicable. In sum, this study offers practical insights into integrating digital health solutions into existing EHISs.

AB - BACKGROUND: To overcome knowledge gaps and optimize long-term follow-up (LTFU) care for childhood cancer survivors, the concept of the Survivorship Passport (SurPass) has been invented. Within the European PanCareSurPass project, the semiautomated and interoperable SurPass (version 2.0) will be optimized, implemented, and evaluated at 6 LTFU care centers representing 6 European countries and 3 distinct health system scenarios: (1) national electronic health information systems (EHISs) in Austria and Lithuania, (2) regional or local EHISs in Italy and Spain, and (3) cancer registries or hospital-based EHISs in Belgium and Germany.OBJECTIVE: We aimed to identify and describe barriers and facilitators for SurPass (version 2.0) implementation concerning semiautomation of data input, interoperability, data protection, privacy, and cybersecurity.METHODS: IT specialists from the 6 LTFU care centers participated in a semistructured digital survey focusing on IT-related barriers and facilitators to SurPass (version 2.0) implementation. We used the fit-viability model to assess the compatibility and feasibility of integrating SurPass into existing EHISs.RESULTS: In total, 13/20 (65%) invited IT specialists participated. The main barriers and facilitators in all 3 health system scenarios related to semiautomated data input and interoperability included unaligned EHIS infrastructure and the use of interoperability frameworks and international coding systems. The main barriers and facilitators related to data protection or privacy and cybersecurity included pseudonymization of personal health data and data retention. According to the fit-viability model, the first health system scenario provides the best fit for SurPass implementation, followed by the second and third scenarios.CONCLUSIONS: This study provides essential insights into the information and IT-related influencing factors that need to be considered when implementing the SurPass (version 2.0) in clinical practice. We recommend the adoption of Health Level Seven Fast Healthcare Interoperability Resources and data security measures such as encryption, pseudonymization, and multifactor authentication to protect personal health data where applicable. In sum, this study offers practical insights into integrating digital health solutions into existing EHISs.

KW - Humans

KW - Telemedicine/methods

KW - Europe

KW - Surveys and Questionnaires

KW - Electronic Health Records

KW - Cancer Survivors

KW - Computer Security

KW - Survivorship

U2 - 10.2196/49910

DO - 10.2196/49910

M3 - Article

C2 - 38696248

SN - 1439-4456

VL - 26

SP - e49910

JO - Journal of Medical Internet Research

JF - Journal of Medical Internet Research

M1 - e49910

ER -

IT-Related Barriers and Facilitators to the Implementation of a New European eHealth Solution, the Digital Survivorship Passport (SurPass Version 2.0): Semistructured Digital Survey

Abstract

UN SDGs

Research Field

Keywords

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