Telemedicine for Ketogenic Dietary Treatment in Epilepsy and Inherited Metabolic Diseases: Survey of Health Care Professionals

Alexander Höller; Anna Katharina Schönlaub; Charlotte Uhlisch; Paul Klingler; Stefan Welte; Bernhard Erich Pfeifer; Günter Schreier; Sabine Scholl-Bürgi; Anastasia Male-Dressler

doi:10.3233/SHTI250182

Telemedicine for Ketogenic Dietary Treatment in Epilepsy and Inherited Metabolic Diseases: Survey of Health Care Professionals

Alexander Höller (Author and Speaker)
, Anna Katharina Schönlaub
, Charlotte Uhlisch
, Paul Klingler
, Stefan Welte
, Bernhard Erich Pfeifer
, Günter Schreier
, Sabine Scholl-Bürgi
, Anastasia Male-Dressler

Digital Health Information Systems

Department of Pediatrics I, Division of Pediatric Neurology, University Hospital Innsbruck
Department of Pediatrics I, Inherited Metabolic Disorders, University Hospital Innsbruck
Institute of Clinical Epidemiology, Public Health, Health Economics, Medical Statistics and Informatics, Medical University of Innsbruck
Division for Digital Medicine and Telehealth, UMIT TIROL - Private University for Health Sciences and Health Technology
Tyrolean Federal Institute for Integrated Care, Tirol Kliniken GmbH
Department of Pediatrics and Adolescent Medicine, Medical University of Vienna

Research output: Chapter in Book or Conference Proceedings › Conference Proceedings with Oral Presentation › peer-review

Abstract

In refractory epilepsy and inherited metabolic disorders, Ketogenic Dietary Therapies (KDT) are established non-pharmacological treatments. Telemedicine might contribute to tackle various challenges related to KDT complexity and the respective target diseases. A questionnaire on the current use and future requirements was provided for health care professionals working in neuropediatrics, inherited metabolic diseases and nutrition within the region of German speaking countries. Distribution was facilitated via an established network. Response rate was 83% (24/29). Respondents were physicians (63%) and experts from the field of nutrition (37%). Telemedicine use in any way was reported by 71%. For future telemedicine aids, provision of digital patient information and aspects regarding ketone body, seizure and growth monitoring were ranked highest, while visualization of blood sugar and sensor integration were rated less relevant. Caution regarding legal aspects (liability), reimbursement and technical integration within the current hospital information system was addressed proactively by participants.

Original language	English
Title of host publication	Studies in Health Technology and Informatics
Subtitle of host publication	dHealth 2025 - Proceedings of the 19th Health Informatics Meets Digital Health Conference
Editors	Martin Baumgartner, Dieter Hayn, Bernhard Pfeifer, Günter Schreier
Publisher	IOS Press BV
Pages	176-177
Number of pages	2
Volume	324
DOIs	https://doi.org/10.3233/SHTI250182
Publication status	Published - May 2025
Event	dHealth 2025: 19th Annual Conference on Health Informatics meets Digital Health - Apothekertrakt: Meidlinger Tor, Grünbergstraße, 1130 Vienna, Austria, Vienna, Austria Duration: 6 May 2025 → 7 May 2025 Conference number: 19 https://dhealth.at/

Publication series

Name	Studies in Health Technology and Informatics
Publisher	IOS Press
Volume	324
ISSN (Print)	0926-9630
ISSN (Electronic)	1879-8365

Conference

Conference	dHealth 2025
Abbreviated title	dHealth 2025
Country/Territory	Austria
City	Vienna
Period	6/05/25 → 7/05/25
Internet address	https://dhealth.at/

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being

Research Field

Exploration of Digital Health

Keywords

ketogenic diet
epilepsy
metabolic diseases
telemedicine

Access to Document

10.3233/SHTI250182Licence: CC BY-NC

Cite this

Höller, A., Schönlaub, A. K., Uhlisch, C., Klingler, P., Welte, S., Pfeifer, B. E., Schreier, G., Scholl-Bürgi, S., & Male-Dressler, A. (2025). Telemedicine for Ketogenic Dietary Treatment in Epilepsy and Inherited Metabolic Diseases: Survey of Health Care Professionals. In M. Baumgartner, D. Hayn, B. Pfeifer, & G. Schreier (Eds.), Studies in Health Technology and Informatics: dHealth 2025 - Proceedings of the 19th Health Informatics Meets Digital Health Conference (Vol. 324, pp. 176-177). (Studies in Health Technology and Informatics; Vol. 324). IOS Press BV. https://doi.org/10.3233/SHTI250182

Höller, Alexander ; Schönlaub, Anna Katharina ; Uhlisch, Charlotte et al. / Telemedicine for Ketogenic Dietary Treatment in Epilepsy and Inherited Metabolic Diseases : Survey of Health Care Professionals. Studies in Health Technology and Informatics: dHealth 2025 - Proceedings of the 19th Health Informatics Meets Digital Health Conference. editor / Martin Baumgartner ; Dieter Hayn ; Bernhard Pfeifer ; Günter Schreier. Vol. 324 IOS Press BV, 2025. pp. 176-177 (Studies in Health Technology and Informatics).

@inproceedings{808adae6a64e4782ad8ed9fbfe91719d,

title = "Telemedicine for Ketogenic Dietary Treatment in Epilepsy and Inherited Metabolic Diseases: Survey of Health Care Professionals",

abstract = "In refractory epilepsy and inherited metabolic disorders, Ketogenic Dietary Therapies (KDT) are established non-pharmacological treatments. Telemedicine might contribute to tackle various challenges related to KDT complexity and the respective target diseases. A questionnaire on the current use and future requirements was provided for health care professionals working in neuropediatrics, inherited metabolic diseases and nutrition within the region of German speaking countries. Distribution was facilitated via an established network. Response rate was 83\% (24/29). Respondents were physicians (63\%) and experts from the field of nutrition (37\%). Telemedicine use in any way was reported by 71\%. For future telemedicine aids, provision of digital patient information and aspects regarding ketone body, seizure and growth monitoring were ranked highest, while visualization of blood sugar and sensor integration were rated less relevant. Caution regarding legal aspects (liability), reimbursement and technical integration within the current hospital information system was addressed proactively by participants.",

keywords = "ketogenic diet, epilepsy, metabolic diseases, telemedicine",

author = "Alexander H{\"o}ller and Sch{\"o}nlaub, \{Anna Katharina\} and Charlotte Uhlisch and Paul Klingler and Stefan Welte and Pfeifer, \{Bernhard Erich\} and G{\"u}nter Schreier and Sabine Scholl-B{\"u}rgi and Anastasia Male-Dressler",

note = "{\textcopyright} 2025 The Authors. This article is published online with Open Access by IOS Press and distributed under the terms of the Creative Commons Attribution Non-Commercial License 4.0 (CC BY-NC 4.0).; dHealth 2025 : 19th Annual Conference on Health Informatics meets Digital Health, dHealth 2025 ; Conference date: 06-05-2025 Through 07-05-2025",

year = "2025",

month = may,

doi = "10.3233/SHTI250182",

language = "English",

volume = "324",

series = "Studies in Health Technology and Informatics",

publisher = "IOS Press BV",

pages = "176--177",

editor = "Martin Baumgartner and Dieter Hayn and Bernhard Pfeifer and G{\"u}nter Schreier",

booktitle = "Studies in Health Technology and Informatics",

address = "Netherlands",

url = "https://dhealth.at/",

}

Höller, A, Schönlaub, AK, Uhlisch, C, Klingler, P, Welte, S, Pfeifer, BE, Schreier, G, Scholl-Bürgi, S & Male-Dressler, A 2025, Telemedicine for Ketogenic Dietary Treatment in Epilepsy and Inherited Metabolic Diseases: Survey of Health Care Professionals. in M Baumgartner, D Hayn, B Pfeifer & G Schreier (eds), Studies in Health Technology and Informatics: dHealth 2025 - Proceedings of the 19th Health Informatics Meets Digital Health Conference. vol. 324, Studies in Health Technology and Informatics, vol. 324, IOS Press BV, pp. 176-177, dHealth 2025, Vienna, Austria, 6/05/25. https://doi.org/10.3233/SHTI250182

Telemedicine for Ketogenic Dietary Treatment in Epilepsy and Inherited Metabolic Diseases: Survey of Health Care Professionals. / Höller, Alexander (Author and Speaker); Schönlaub, Anna Katharina; Uhlisch, Charlotte et al.
Studies in Health Technology and Informatics: dHealth 2025 - Proceedings of the 19th Health Informatics Meets Digital Health Conference. ed. / Martin Baumgartner; Dieter Hayn; Bernhard Pfeifer; Günter Schreier. Vol. 324 IOS Press BV, 2025. p. 176-177 (Studies in Health Technology and Informatics; Vol. 324).

Research output: Chapter in Book or Conference Proceedings › Conference Proceedings with Oral Presentation › peer-review

TY - GEN

T1 - Telemedicine for Ketogenic Dietary Treatment in Epilepsy and Inherited Metabolic Diseases

T2 - dHealth 2025

AU - Schönlaub, Anna Katharina

AU - Uhlisch, Charlotte

AU - Klingler, Paul

AU - Welte, Stefan

AU - Pfeifer, Bernhard Erich

AU - Schreier, Günter

AU - Scholl-Bürgi, Sabine

AU - Male-Dressler, Anastasia

A2 - Höller, Alexander

A2 - Baumgartner, Martin

A2 - Hayn, Dieter

A2 - Pfeifer, Bernhard

A2 - Schreier, Günter

N1 - Conference code: 19

PY - 2025/5

Y1 - 2025/5

N2 - In refractory epilepsy and inherited metabolic disorders, Ketogenic Dietary Therapies (KDT) are established non-pharmacological treatments. Telemedicine might contribute to tackle various challenges related to KDT complexity and the respective target diseases. A questionnaire on the current use and future requirements was provided for health care professionals working in neuropediatrics, inherited metabolic diseases and nutrition within the region of German speaking countries. Distribution was facilitated via an established network. Response rate was 83% (24/29). Respondents were physicians (63%) and experts from the field of nutrition (37%). Telemedicine use in any way was reported by 71%. For future telemedicine aids, provision of digital patient information and aspects regarding ketone body, seizure and growth monitoring were ranked highest, while visualization of blood sugar and sensor integration were rated less relevant. Caution regarding legal aspects (liability), reimbursement and technical integration within the current hospital information system was addressed proactively by participants.

AB - In refractory epilepsy and inherited metabolic disorders, Ketogenic Dietary Therapies (KDT) are established non-pharmacological treatments. Telemedicine might contribute to tackle various challenges related to KDT complexity and the respective target diseases. A questionnaire on the current use and future requirements was provided for health care professionals working in neuropediatrics, inherited metabolic diseases and nutrition within the region of German speaking countries. Distribution was facilitated via an established network. Response rate was 83% (24/29). Respondents were physicians (63%) and experts from the field of nutrition (37%). Telemedicine use in any way was reported by 71%. For future telemedicine aids, provision of digital patient information and aspects regarding ketone body, seizure and growth monitoring were ranked highest, while visualization of blood sugar and sensor integration were rated less relevant. Caution regarding legal aspects (liability), reimbursement and technical integration within the current hospital information system was addressed proactively by participants.

KW - ketogenic diet

KW - epilepsy

KW - metabolic diseases

KW - telemedicine

UR - https://dhealth.at/dhealth-2025-proceedings/

U2 - 10.3233/SHTI250182

DO - 10.3233/SHTI250182

M3 - Conference Proceedings with Oral Presentation

C2 - 40270406

VL - 324

T3 - Studies in Health Technology and Informatics

SP - 176

EP - 177

BT - Studies in Health Technology and Informatics

PB - IOS Press BV

Y2 - 6 May 2025 through 7 May 2025

ER -

Höller A, Schönlaub AK, Uhlisch C, Klingler P, Welte S, Pfeifer BE et al. Telemedicine for Ketogenic Dietary Treatment in Epilepsy and Inherited Metabolic Diseases: Survey of Health Care Professionals. In Baumgartner M, Hayn D, Pfeifer B, Schreier G, editors, Studies in Health Technology and Informatics: dHealth 2025 - Proceedings of the 19th Health Informatics Meets Digital Health Conference. Vol. 324. IOS Press BV. 2025. p. 176-177. (Studies in Health Technology and Informatics). Epub 2025 Apr 24. doi: 10.3233/SHTI250182

Telemedicine for Ketogenic Dietary Treatment in Epilepsy and Inherited Metabolic Diseases: Survey of Health Care Professionals

Abstract

Publication series

Conference

UN SDGs

Research Field

Keywords

Access to Document

Other files and links

Fingerprint

Cite this